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I welcome all those who have decided to visit my website.

Let me introduce myself.

My name is Kristián, I am 34 years old, and since birth I have been battling with a rare skin disease that affects only a few percent of people worldwide. It is a disease often called butterfly’s wings disease (Epidermolysis Bullosa). It may take several forms, and I suffer from its most difficult from - dystrophic form. You can read more about me in the "About me" section. A more detailed description of Epidermolysis Bullosa can be found HERE. In addition to my "CV" you can find here an article from the newspapers Nový Čas, photo gallery.